“In a very short period of time, our understanding of the universe changed forever… The immensity of the universe didn’t suddenly change, but our ability to see and understand this truth changed dramatically. And with that greater light, mankind was introduced to glorious vistas we had never before imagined.” – Dieter F. Uchtdorf
I have thought often the past few weeks on these words. I can relate to them. They tell my story. I see the value and meaning of life differently than I had ever seen or pictured it before. The veil over my face has been lifted to see a greater universe than I knew previously. I strangely feel the dark and sunny places of other individuals emotions and can relate to them. As much as my own experiences will allow me to of course.
Before Beckett’s diagnosis of Biliary Atresia, we had what I considered a great life. Kim and I found the chaotic rhythm for our family of 3 beautiful well mannered kids. Our marriage was thriving as we established weekly dates and activities together. I was starting to find the groove of my career after being promoted to a new position of visibility. Talk of insurance and financial planning was for “other” people. Adalyn and Raemee, our two oldest girls, have never had ear infections. No medical threats would ever happen to us. Life was as close to perfect as it could get.
The text message I received from Kim on that sunny Tuesday was the start of my eye opening experience that is now the life I live. Since that Tuesday, 35 days have past. In those thirty-five days, 17 of them to this day have been spent in the hospital. Puddles of tears have been shed, hard conversations have taken place, and ultimately God has provided me with a humbling blow to my core that has made me grow up in areas I have never wanted to. Nor did I know existed within me or my capacity. I think we have all experienced this to different degrees.
In the end I am grateful for the deeper capacity of gratitude, empathy, perspective, and emotion that I feel for others. It has enabled me to love. To see the universe for what it’s supposed to be. I have a changed soul and I can’t describe it. You can’t put words next to something like what I feel inside now that is so powerful. I can say that it runs deep, it’s consuming, and it requires me to take action.
I’m not grateful for what is happening to Beckett. I would never wish this on my son. Though he be a warrior, it’s not a fight I want him in so that I can learn a soul transforming lesson. However, I am grateful for the level of communication it has provided me. As I looked into Beckett’s eyes last night, I saw him. I saw the fear that exists inside him. That same fear I see on the faces of parents of sick kids in the hospital. The same look I see when I look in the mirror. I felt how tired he was from a week of being poked (5 different IVs and multiple blood draws), sedated (twice), and drained (the excessive fluid from his abdomen). I understood for a brief moment the exhaustion of being administered 6 different medications one after the other, or the toll that deep vomiting multiple times a day can take on a 3 month old body. When he wrapped his little fingers around my thumb, he was asking me to not leave him alone and I heard through his expression him say “I am trying dad!” For a second, time stopped and I was learning from my man cub. He has a mission to complete. A battle to fight. My son has a purpose and he knows it. We all do. Just like I love my son, our Father in Heaven loves us all. I understand now why “in the sixth hour there was darkness over all the land” (Matthew 27:45) and in the ninth hour “the earth did quake, and the rocks rent.” (Matthew 27:51) It wasn’t easy for the Son, and clearly it wasn’t easy for the Father, but they saw and were aware of the glorious vistas of the universe.
Beckett is a warrior. Even though he has already been through so much, his battlefield is going to get harder, scarier, and so much worse. In all of this there is a lot that will be asked of him. He will pay a steep price to gain the life he has waiting for him post liver transplant. I am so proud of him and through him I am finally seeing and understanding what life is really about. #loveyaBeckett