Because Beckett wasn’t eating, we were actually able to sleep really well at night. He was so sleepy and would only wake up when the nurses came in to check his vitals. Then they would put him back to sleep. So even though Shawn and I were crammed on this tiny little couch we slept pretty good. After we woke up (around 6 am again!), I pumped and we got ready for the day. We met our nurse Tammy and she was amazing!! So fun and willing to help us with whatever we needed. We decided to give Beckett a bath because he was starting to smell like hospital. It was a little frustrating because he couldn’t have much water due to his incision and he couldn’t relax because we had to hold a hand and a foot out of the water due to his IVs. But even with all that, oh how he smelled so good after that bath.
He was finally looking and acting more like himself and the BEST part was that he gave us some smiles!! I had been saying all week that I needed to see him smiling because that’s who he is. He is our smiley, lovey boy. I can’t even express the emotion I felt when he kept smiling and cooing at us! We knew he was feeling better, incision, wires, IV’s and all.
He also continued to poop throughout the day. It was such a relief to know that his organs were starting to work again. I’ve never been so obsessed with poop in my life. Every diaper change we would inspect the diaper before the nurses would weigh them. We just kept tabs on color, and consistency (TMI, I know). And it looks like that is something that I’ll be doing for the next few years.
Because he was pooping, we got the green light to start feeding him. He was allowed 1/2 oz of pedialyte every 3 hours. He hadn’t eaten in 3 whole days but I just had a feeling that he would not be happy that he could only have 1/2 oz. It was important though, to know that he could keep it down and that it could make it through his entire system. So we did that for a few feeds and then we upped it to 1 oz because he was tolerating it well. Then we had shift change. Once it was time for the next feed, I talked with my nurse and she said, “Ok I’ll go get the 1 oz of breastmilk ready.” I said, “Are we done with the pedialyte?” She looked back at the orders and told us that it never said to do pedialyte. The orders were always for 1 oz of breastmilk. Turns out when our day nurse, Tammy, had received the ORAL orders she was told to start with 1/2 of pedialyte. But the WRITTEN orders said 1 oz of breastmilk. Poor Tammy felt so bad about the mix up but it was no big deal. We were just excited that he could have breastmilk. I was praying he would tolerate it ok. We tried that night and he did great.
Written by: Kimber
We were able to get a room at the Ronald McDonald Room here at Primary Children’s. That was so wonderful. They have queen size temperpedic beds. We slept so great but again we were up around 6 and just couldn’t go back to sleep. We showered, got ready and headed back to see the little man. When we saw him, he looked so much less swollen already! We were excited. He proceeded to pee so much throughout the day. And the difference in how swollen he looked was very obvious. We kept listening for bowel sounds and the day started with none. But by afternoon, our nurse said she could hear his bowels starting to work! We were so excited. Then came the insane amount of prayers for poop.
As we were sitting in our room, trying to stay sane with the craziness and boredom, we saw a familiar face. Shawn’s sister came by to visit us. She was so great. She helped keep our minds off of everything. While she was here, a social worker stopped by to talk to us. We weren’t opening up much but Shawn’s sister helped us start to be more honest with how we were really holding up. Pretty soon Shawn and I were both in tears. It’s really hard to be in the hospital day after day. You try to be strong so you can handle everything that the nurses and doctors are sending your way but all you want to do is cry and have someone else handle it. I just don’t feel like an adult. I kept thinking someone else would take care of it for me. Then you start building walls and becoming numb to your emotions to protect yourself. The social worker helped us break some of those walls down although they are building back up again.
I think this was one of the hardest days emotionally. While Beckett was doing so great, I was realizing that I was not. I was having a hard time processing everything. And trying to gather as much information as possible while not freaking out about everything. Knowing what our next 50 steps are but only worrying about the next step. It’s such a hard balance and will be something I have to work on for the rest of my life.
While we were talking to the social worker, Beckett started passing gas. He was acting a little uncomfortable and the gas just kept coming. Pretty soon we heard him poop! Oh man, we were elated. We were so excited about the poop that we came up with the idea to make a POO ghost. Around this time, the Child Life Specialist dropped by to check on us and so she was able to grab us some supplies to make our idea a reality. After we had made the poo ghost, we came up with Poo Points. We wrote down the names of the nurses, techs etc that helped us out. They could earn poo points for things like taking care of Becks, talking to us, answering questions or just doing something cool for us. We had so many staff at Primary’s who thought this was hilarious. Some even took pictures. And I will say that it created quite the contest between the nurses. It was a great way to laugh and take our mind off of everything that was going on.
Written by: Kimber